Journal d'oncologie intégrative

Developing a Web-Based, Patient-Centered Data Collection and Management Approach for a Multi-Center Lung Cancer Study

Abstract

Monirul Islam KM, Jiajun Wen, Xiaqing Jiang, June Ryan, Ann Fetrick RN and Apar Ganti

Research Electronic Data Capture (REDCap), a web-based approach, provides an easy and efficient way for trained individuals to enter, maintain, and use project data. It also offers the capacity to use surveys and common data collection forms in a way that saves researchers time and money. We found these strengths and the ability to store all study data in one place so as to reduce data safety and confidentiality concerns very supportive of our patient-centered outcomes research (PCOR), with emphasis on patient-centeredness. This article describes our development of a web-base, patient-centered data collection and management approach for our multi-center lung cancer PCOR.